SECTION I: THE ROLE OF NPOs IN ALS CARE AND RESEARCH

Mr. Steve Bell. President of the International Alliance of ALS/MND Associations. Shefield. England
Ms. Patricia García Luna. Vice-president of ELA Andalucía. Sevilla
Ms. Evy Reviers. CEO ALS Liga België. Chairwoman EUPALS. Leuven. Belgium
Ms. Laura Baget Gutiérrez. Psycologist. Fundació Miquel Valls. Barcelona
Mr. Steve Bell. President of the International Alliance of ALS/MND Associations. Shefield. England
Mr. Rob A. Goldstein. Vice President of ALS Community Engagement & Chief Marketing Officer. ALS Therapy Development Institute
Mr. Darío Ryba. President of UNELA (Union of ALS Associations in Latin America). Argentina

SECTION II: CLINICAL RESEARCH AND CARE, TWO INSEPARABLE PILLARS FOR THE FIGHT AGAINST ALS

Mr. Leonard Van den Berg. University of Utrecht. President of ENCALS. Member of ALS Dream Team. Utrecht. Netherlands
Dr. Jesús Mora Pardina. Director, ALS Unit. Hospital San Rafael. Madrid
Dr. Mónica Povedano Panadés. Coordinator, Motoneuron Functional Unit. Head of the Neurophysiology Unit. Neurology Department. Hospital Universitario de Bellvitge-IDIBELL. Barcelona
Dr. Adolfo López de Munain Arregui. Head of Unit at the Neurology Department. Hospital Universitario Donostia. Biodonostia Health Research Institute, CIBERNED. San Sebastián
Dr. César Hernández García. Head of the Department of Medicines for Human Use. AEMPS. Madrid
Ms. Amelia Martín Uranga. Responsible for the platform for innovative medicines of farmaindustria. Madrid

 

WORLD CAFÉ: HOW DO WE TAKE CARE OF THE CAREGIVER?

Dr. Mario López de Ávila Muñoz. Founder NODOS. Madrid

Mini-gathering: The media, how can they contribute to the visibility and reporting of ALS?

Mr. Arturo San Román Ferreiro. General Director of Content. Grupo Gestiona. Madrid
Mr. Emilio de Benito Cañizares. Health and Science Editor. Diario EL PAIS. Madrid
Ms. Cristina López Schlichting. Program Fin de Semana. Cadena COPE. Madrid
Mr. Fernando Jáuregui Campuzano. Journalist. President of Educa2020. Madrid

 

SECTION III: HOW TO ACHIEVE EFFECTIVE COORDINATION BETWEEN HEALTH CARE AND SOCIAL CARE?

Mini-gathering: Ongoing experiences for an effective integration of care in ALS
Ms. María Bestué Cardiel.
Spokesperson for Healthcare Strategies. General Directorate for Healthcare. Government of Aragón
Ms. Ana Dávila-Ponce de León Municio. Directora General de Humanización. Consejería de Sanidad. Comunidad de Madrid. Madrid
Mr. Gonzalo Rivas Rubiales. Dirección General de Personas con Discapacidad. Consejería de Igualdad y Políticas Sociales. Junta de Andalucía
D. Jesús Vázquez Almuiña. Conselleiro de Sanidade. Xunta de Galicia

 

SECTION IV: BEST CLINICAL PRACTICE IN HEALTH CARE

Pr. Orla Hardiman. Beaumont MND Clinic. Dublin. Ireland
Dr. Emilia Barrot Cortés. Head of the Pulmonology Department. CMU of Respiratory Diseases. Hospital Universitario Virgen del Rocío. Sevilla
Ms. Pilar Cordero Vázquez. Case Manager at the ALS Unit. Hospital Universitario Doce de Octubre. Madrid
Ms. Oihana Monasterio Jiménez. Dietist-Nutricionist. Nutrition Unit. ALS Unit. Hospital Universitario Basurto. Bilbao
Dr. Jordi Gascón Bayarri. Neurologist. Neurology. Department. Hospital Universitario de Bellvitge. Barcelona
Dr. Emilio Servera Pieras. Head of the Pulmonology Department. Hospital Clínico Universitario. Valencia

 

SECTION V: THE TECHNOLOGY OF THE FUTURE FOR ALS

Ms. May Escobar Lago. Director, Public Affairs. Fundación Luzón. Madrid
Mr. Markus Wilhelms. Director, Mowoot. Barcelona
Mr. Javier Montaner Gutiérrez. Mr. José Ángel Jiménez Vadillo. Founders of Mouse4all. Madrid
Mr. Carlos Benedito Tabares. Highschool student. Member of ETSC (Electronic Team San Cristóbal). Colegio San Cristóbal. Castellón
Mr. Julio Boixader Gil. Colegio San Cristóbal. Castellón
Mr. Eduardo Jaúregui Torrecilla. Co-Founder and CEO. IRISBOND. Vitoria-Gasteiz

 

ROUND TABLE OF THE ALS COMMUNITY: FUTURE CHALLENGES

Ms. Ana Isabel López-Casero Beltrán. General Director, Fundación Luzón. Madrid
Ms. May Escobar Lago. Director, Public Affairs. Fundación Luzón. Madrid
Dr. Jesús Mora Pardina. Director, ALS Unit. Hospital San Rafael. Madrid
Dr. María Bestué Cardiel. Spokesperson for Healthcare Strategies. Dirección General de Asistencia Sanitaria. Gobierno de Aragón
Dr. Emilia Barrot Cortés. Head of the Pulmonology Department. Hospital Universitario Virgen del Rocío. Sevilla
Dr. Mario López de Ávila Muñoz. Founder NODOS. Madrid
Dr. David Rudilla García. Psychologist. Hospital Universitario La Princesa-Air Liquide Healthcare. Madrid

ALS IN THE CENTURY OF EMOTIONS, WOMEN AND NEUROSCIENCE

Dr. Jordi Montero Homs. Neurophysiologist. Institut Dexeus. Barcelona

 

RESEARCH GROUPS AND CARE DEVICES

Dr. Rosario Osta Pinzotas. LAGENBIO. School of Veterinary. Universidad de Zaragoza. Institute of Healthcare Research of Aragón. Zaragoza
Dr. Alberto García Redondo. Research Laboratory. ALS Unit. Hospital Universitario Doce de Octubre. CIBERER U-723. Itto. Univ. Inv. Neuroquímica. Dpto. BqBM – Universidad Complutense. Madrid